Scotland's voice for spina bifida, hydrocephalus and related conditions.
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Latest news

Rugby Legend John Beattie leads A Question of Burns

Continuing a 25 year run of exceptional Burns Suppers with the finest of Burns speakers and the most sumptuous of Scottish Fayre, the Scottish Spina Bifida Association are now launching our new incarnation of the event, ‘A Question of Burns’ on Thursday 22nd January 2015.

As supporters we’d love for you to enjoy this entertaining evening and we're delighted to say that tickets are now available at £85pp or Tables of Ten only £800.

This new corporate event will be fresh and entertaining whilst keeping the traditional values that you expect from a Burns Supper. Sponsored by Chisholm Hunter, A Question of Burns will give all table hosts the unique opportunity to network and socialise with their guests throughout the evening – the perfect blend of business and pleasure.

Held at the stylish Radisson BLU Hotel, we guarantee a Burns Supper like no other. We’re keeping all the traditional elements of a Burns Supper including a renowned rendition of Tam O’Shanter from Karen Dunbar (Chewin’ The Fat, The Karen Dunbar Show) and an immortal memory from the inimitable sportsman George McNeill along with a 4 course Scottish dinner. However, we’re adding a unique twist with the addition of a Burns quiz hosted by rugby legend John Beattie (BBC Radio Scotland).

To book tickets or for further details please visit our website, call 01236 794508 or email .

Weir Engineering Services Alloa donate £4,000 to SSBA

Weir Engineering Services Alloa attended a charity Golf Day held by SSE Fiddlers Ferry Power Station on Thursday 3rd July and unfortunately they came last. However their failure on the course led to a victory in the dining room as the losing team were awarded a generous cheque for a charity of their choosing. This surprise twist in their day led to a £4,000 donation being made to Weir’s nominated charity, the Scottish Spina Bifida Association (SSBA).

On 25th November Weir Engineering Services Alloa employees Douglas Kinninmonth and Peter Boyle visited the Scottish Spina Bifida Association’s Family Support Centre in Cumbernauld to officially present the charity with their donation.

Clare Cogan Turner, Assistant Director of Fundraising for the SSBA says, “We can’t thank Weir Engineering Services Alloa and SSE Fiddlers Ferry Power Station enough for this generous donation which will have a massive impact to those who need our help. As a self-funded charity we have to raise £1 million annually to continue providing a high level of support, information and training to all those affected by these complex disabilities in Scotland, so all donations are crucial to us.”

Our Honorary Patron Gordon Ramsay OBE continues his support with the Gordon Ramsay Foundation

The SSBA is very grateful to be one of the chosen charities of the Gordon Ramsay Foundation; Gordon has supported us for almost 10 years now after meeting our Chairperson Dr Margo Whiteford at the Great North Run. Over the years he has hosted many fundraising Gala Dinners in aid of the Association and has helped to raise awareness of our charity and the conditions of spina bifida and hydrocephalus worldwide.

The GR Foundation aims to raise £2million over 2 years to support a number of charitable causes including our own; their first initiative is GR100 in which Gordon seeks 100 motivated individuals to join his exclusive Ironman club to compete alongside him in the half Ironman 70.3 Staffordshire 2015 on the 14th of June 2015.

We wish Gordon and the GR Foundation good luck in their efforts and hope they have massive success. We would also like to thank Gordon for his patronage and support.

If you would like more information on the Gordon Ramsay Foundation or the GR100 club click the links below.

GR100 Club

Gordon Ramsay Foundation

The SSBA Gets Ready For World Spina Bifida & Hydrocephalus Day 2014

With World Spina Bifida & Hydrocephalus day taking place on Saturday 25th October 2014 the time for spreading the message far and wide is fast approaching!

To help in the important task of raising awareness of these conditions the SSBA has created our very own Twibbon! Supporters can visit the Twibbon page to add our Twibbon to their Twitter or Facebook profiles and proudly display the blue and yellow colours for all to see.

There are over 3,500 families and individuals in Scotland living with spina bifida and/or hydrocephalus, with less than 1% in government funding the SSBA has to raise £1 million a year to continue our vital services and provide the same level of support across Scotland as we currently do. We need your help to raise funds and spread awareness of these conditions.

As part of World Spina Bifida & Hydrocephalus day 2014 we are holding a special week of fundraising between the 24th of October to the 2nd of November 2014 called "With a Little Help from Our Friends". The campaign invites supporters to hold their own events in aid of the Association, anyone hosting an event during the campaign will receive a Spiney the Diney "Help from Our Friends" pack and our mascot Spiney the Diney could even show up at their event*!

 

*Spiney will not be able to attend every event but will visit as many as possible

To get involved with the "With a Little Help from Our Friends" campaign please contact Dave on 01236 794508 or email dave.kennedy@ssba.org.uk

Color Me Rad Glasgow/Livingston

We had a fantastic turn out of supporters at the recent Color Me Rad run on Saturday 23rd of August 2014 at the Glasgow/Livingston run!

We are very grateful to be selected as the official charity partner for this year's run, a big thanks to all the runners, organisers, volunteers and supporters for making this such a great event!

The gallery with all the photos is located here.

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