How can we help?
The main aim of the SSBA is to increase public awareness and understanding of individuals with spina bifida and/or hydrocephalus and allied conditions.
We aim to support all those affected to identify their needs and to empower them to make informed choices and decisions.
The Association's Direct Services and Project Teams have specialist knowledge of the conditions and are available to provide information, advice and support not only to those affected, their parents, carers and families but also to those working in healthcare, education and employment in order to ensure that children, young people and adults all receive the treatment, schooling, employment and future they deserve.
We have a number of services available including our Helpline, Family Support Service, Local Family Support Groups and Information Leaflets.
