What we do

How is SSBA Helping?

Currently the Scottish Spina Bifida Association listen and help children, adults and families with spina bifida, hydrocephalus and related conditions. Although hydrocephalus is an allied condition of spina bifida, it can also occur independently as a result of other conditions. As our Family Support Workers have an expertise in the condition we can also support individuals with hydrocephalus as a sole condition.

The main aspects of the Association's service delivery is the Family Support Service and Lo-call Helpline. Currently there are just over 3000 registered users of the Association who benefit from access to the Family Support Service often via its lo-call telephone help line.

Lo-call Helpline

The helpline is a professional service staffed by specialist support workers and by calling, people are put in contact with an experienced family support worker who can provide personalised information on all aspects of spina bifida and hydrocephalus - from antenatal enquiries, health and social care, education and transition to independence.

Every call to our helpline is unique.

Scottish Family Support Centre

In 2006 the Association completed building a new Scottish Family Support Centre. This purpose built facility now accommodates the Family Support Service and has allowed the Association to expand it's services. The Centre provides a child friendly environment where a range of training, recreational and support services are available to all those affected.

To find out more about the Family Support Service and the range of services that are available at the new Family Support Centre please click here