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SSBA is the only registered charity with a Scotland wide remit to support children, young people and adults with spina bifida and/or hydrocephalus and allied conditions. Right now there are over 3000 people in Scotland affected by these disabilities. Without our Family Support Services, our Family Support Centre and Lo-call helpline many people would not have access to the support they need. Every year our Family Support Workers handle over 2500 enquiries and make over 250 home and hospital visits.
It costs over £800,000 every year to maintain such a high level of services and we rely entirely on fundraising events, donations and the goodwill of volunteers to raise these much needed funds. SSBA has to raise nearly £60 an hour to continue to be able to give essential support which includes home and hospital visits, information and training days, social and leisure groups, intensive support to all families with a newborn baby, subsidised holidays and our lo-call helpline.
» Remember!
- SSBA has to raise over £800,000 every year to continue to provide information and support to service users
- SSBA receives less than 4% in government funding
- SSBA relies entirely on donations and the goodwill of volunteers
- SSBA is a registered charity and over 3000 individuals and families benefit from our support.
» What Difference Can I Make?
- £20 could provide information and telephone support for a family
- £50 could enable a member of staff to provide support at home, at school or in hospital
- £100 could pay for a family to attend one of the Association's Family Weekends
- £500 could allow 4 families subsidised holidays/respite in a specially adapted cottage
- £1000 could allow 6 months intensive support to a family with a new born baby
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