Legal Status & Organisational Structure

Registered Charity

The Association is a recognised Scottish Charity (Reg No SC 013328) and in November 2000 the Association also became a Company Limited by Guarantee (Registered in Scotland No. 213050) and is now governed by its "Memorandum and Articles" of Association.

Accountability

The Association is accountable to members of the Company. An Annual General Meeting is held at which time the Board of Directors are elected for a fixed period. The meeting also receives the Annual Report and Audited Accounts. Any change to the Memorandum and Articles of the company requires the assent of the members of the Company at an Annual or Extraordinary General Meeting.

Board of Directors

The Company is managed by a Board of Directors (15) appointed by members of the Company. The Board strives to be representative of all key stakeholders and currently includes users from throughout Scotland working alongside relevant professionals in medicine, business and commerce.

The Board of Directors is responsible for setting overall strategy and policy whilst the operational responsibility is vested in the Chief Executive who also acts as Company Secretary

User Representation

The majority of Directors serving on the Board are individuals with spina bifida and or hydrocephalus or parents or carers of individuals with spina bifida and/ or hydrocephalus or allied disorders